Well, the new anti-spasmodic is now up to 3 doses a day, following phone call with GP on Friday. And he's also put me on a short dose of steroids to see if that'll kick-start anything positive. Then he writes to the Pain Management Clinic.
My weekend was utterly trashed, although not entirely by the RSD for once, and it feels as though the depression is never going to lift. This has been the toughest month ever, for so many reasons.
This week I have been mostly reading...... :) ...... well, I've been reading up on Fibromyalgia, which my former GP told me I also had a couple of years ago. The treatment is much the same anyway and so it wouldn't make a whole heap of difference from that point of view - i.e., there is no effective treatment, so try these because they might help - and you can't take double the dosage just because you've got both conditions, ha ha ha, LOL etc. But it might explain why I've got such a bad case of RSD. The list of symptoms was like reading about my life, and comments from fellow sufferers had me saying "Me too!" over and over again.
More FMS than RSD, or more RSD than FMS? Neither, actually, because IMHO they feed off each other and so it's basically 50/50.
But I feel such embarrassment about telling anyone that there's another underlying condition that's equally weird. My true nature is one of finding humour in everything and laughter being not only the best medicine but a way of life, and I fear it makes me sound like a real misery to have so much flipping wrong with me all the bloody time. And that's so NOT the real me. And that's hard.
But you have to admit:
Reflex Sympathetic Dystrophy? Weird.
Fibromyalgia? Weird.
Raynaud's Syndrome? Weird.
It's all a bit - well, weird, don't you think? Add asthma, high blood pressure (but controlled by drugs) and a few other things I shan't go into and I'm like a walking medical disaster area!!!
I'm in extreme pain tonight; it's so excruciating that it's 3.00 am and I still haven't gone to bed because I'm scared of taking my trousers and boots and socks off because I know how much extra that will hurt. Isn't it ridiculous? But that's what living with RSD is like - so many aspects of the condition itself are ridiculous before you start.
And all of this from a sprained ankle. Yep, that's ridiculous all right.
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4 comments:
It IS ridiculous, you're right. But you're incredibly sane considering everything you've gone through / are going through! I think it has a lot to do with your humourous side, which always lifts the reader up when you're talking about even the most miserable of things. That's the way you've got to keep going - by laughing. That sounds like some sort of enlightenment to me! ;)
Listen, if there's ever anything I can do please let me know. :)
*hugsssssss* :) xxx
Hi!
I have "RSD" on my google alert, I usually get the strangest posts and some early mornings just delete the message in the inbox without even giving it a glance. This morning was different and I am very happy I took the time to read the message. I have RSD among other health concerns and couldn't agree more that humor helps us. My dreaded MIL says I laugh too much to feel very bad. Depending on how I feel that thought just makes me laugh more or feel very sad that someone feels the need to doubt that someone is in that much pain and would make it all up. Anyway, I have bookmarked your blog, bookmarking is about as far as my computer skills go, I tell the warden (my affectionate name for hubby, as a fellow RSD'er you will probably be one of the few to get "it"), that if I ever get to know how to make things work on the computer he might be out of a job. :) I look forward to reading about what is new in your life. I smiled about your 3600 mgs of good ole "gab." When I got my first bottle of pills at that dosage that moved it to the back of the bottle line - I like you am on more that 12 meds. I use the bottle to put my used diabetes needles in - the biggest I currently have and hope it stays that way - but what are the chances? :) Anyway, just wanted to let you know I am out here and reading and understanding a bit. Hope this is a good week for you.
hi Sinead
Thanks for those lovely comments - I think you might be on to something with the enlightenment, and that's given me such a buzz - I've never seen it in those terms before now I'm taking a lot of comfort from that thought ;)
Bless you hunni - you do way more than you probably know as it is xx
*hugs* :) xxx
Hi Paula - thank you so much for stopping by, it's great to "meet" you!!! :) Thank you too for your lovely comments, I'm so pleased that you enjoyed reading my blog and appreciated the tone!!
I'm so sorry that you're in the same boat though - RSD is something I'd love not to have in common with you! - but it seems as though you're a lot like me and cover a lot up with humour. And it really is the only way to be, I think. I've known people who are so weighed down with the misery of it that they've made themselves totally depressed, and I find it so sad when people don't have the ability to find the humour in it all.
Oh yes, that old "But you don't LOOK ill!" thing - I agree, it's incredible to think that there are some individuals who think you'd make something like this up. As I said once to another girl on the receiving end of such disbelief, if you were going to fake a condition then you sure as hell wouldn't pick this one!!!! :)
Oh dear me yes, the role of the warden is crucial, to save us from ourselves. I'm banned from the kitchen, for a start. And "Sit!" is a useful command too - "woof bloody woof" being the correct response before complying, of course!!! :)
So many pills that we rattle and yet so little they seem to do at times - it's bizarre, isn't it?
Thank you again for posting your comments, I'm delighted to have met you :). Keep reading and please keep in touch :)
Take care, and I hope you have a good week too (weather permitting, eh?!!)
all the very best
Yvonne
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