I made it. I got the last of the wretched Topiramate out of my system. It was tough. Very tough. But it was gone and the new experiment could begin: adding the anti-spasmodic just 2mg at a time, very slowly, until we gradually reached a maximum of 8mg a day. Well, tomorrow is my first day on 4 mg. Meanwhile, we started to up the Gabapentin dosage to 3600mg a day (!!!!!).
Well, that's been flipping marvellous. I've reached the dizzy heights of 3300mg and was gripped by the worst cramps of my entire life. It started early Sunday morning in my right calf and it's now early on Tuesday and it han't gone yet - the left calf has joined in though, in an unwelcome gesture of solidarity. My GP has told me to cut back to 3000mg and see if that helps - I'm to report back at the end of the week, sooner if the cramps don't improve. I couldn't wish for a more understanding doctor, he is taking such an interest and he genuinely cares and wants to help. He's then going to write to the Pain Consultant and basically say "OK then - now what?!"
It hasn't been an easy few weeks. I can only sleep almost sitting up and even then it's now drug-assisted, I'm afraid. Yes, I'm on sleeping tablets. I was just so exhausted from lack of sleep and the GP said I really did need something to tide me over and give me the chance to get some proper rest. And he was right, of course - I didn't realise how poorly I'd been sleeping until I'd had a really refreshing night's sleep!! Those little blue pills have been a Godsend.
There is something, though, which has given me an enormous amount of help with some pain relief and has lifted my spirits. I want to tell the world about this because it's amazing.
You may well have heard of reiki healing - my physio had discussed it with me once but because it involved either being touched by the healer or their hands close to the body it wasn't going to be suitable - as soon as the hands got anywhere near I would go into spasm, which would be counter-productive. I
Well, I have just discovered a wonderful lady named Shaz who, amongst her many gifts, is a reiki master, and she has invented the most delightful way to send distant healing. She takes an adorable little teddy bear and gives him a full reiki treatment. The reiki2u bear can then be sent to whoever needs him - including yourself, as I was anxious to check.
Do you think that sounds fanciful? Yes, you probably do. But I can honestly tell you that - IT WORKS!!!!!!! I was in a desperate state when my bear arrived. I didn't know what to expect. But as I unwrapped the little fellow and held him close I was rocked back in my seat with what I can only describe as pure energy, and it was like being enfolded in a pure white light. And then - bliss!! My pain was eased. And I cried with the sheer joy and relief of it. I felt able to cope.
I know I'm in a bad way at the moment but that's largely the side-effects of the drugs - and even then reiki2u bear is still helping. My hips have been so much better today, as have my hands.
There will be some people who won't believe that what I have just written is possible. Fine, that's their choice. But believe me, it's more than possible. It happened to me, it's continuing to happen to me and having a tangible makes the distant healing seem so close.
reiki2u bear - http://www.freewebs.com/reiki2u/ if you're interested. Shaz is a lovely, kind and caring lady and one of those people who make the world seem a better place.
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1 comment:
I'm glad the reiki bear is continuing to help you, even through these horrible side effects of changing the dosage/drugs. Your whole system must be confused when you need to change drugs, and I hope it settles down soon.
Still thinking of you hun, and I'm also praying for you know what as well (re. your book).
That is amazing what you experienced from the bear though! Incredible.... Anyway, hope you have a good night's sleep. I know that's hard to do, even with all those sleeping pills, when you think of Saturday night(!!) :D
*Lots of hugs!*
Sinead xx
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